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About the Author |
| Marlene Lutkenhoff, RN, MSN, is the clinical nursing manager in the Division of Developmental and Behavioral Pediatrics at Cincinnati Children's Hospital Medical Center. She served on the National SBA Board for four years and during that time served as Conference Chair for the National Conference in 06 and 07. She has also advocated on Capitol Hill three times for individuals with spina bifida. |
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Now thoroughly revised and updated, Children with Spina Bifida--the complete and highly acclaimed guide for parents and professionals--is available in a new edition. Children with this congenital condition, which occurs in approximately 1 out of 1,000 births, can have complex medical and therapeutic needs. Every aspect of their care and development from birth to age six is covered in this comprehensive resource.
Chapters focus on specific issues, such as:
- Causes of spina bifida
- Prenatal diagnosis
- Neurosurgery
- Urological & bowel management
- Orthopedic concerns
- Physical therapy
- Common medical problems
- Development
- Day-to-day parenting issues
- Education & accommodations
- A child's emotional health
- Legal rights & hurdles
- Perspectives from adolescents & adults with spina bifida
New to this edition is the latest information on research and medical advancements on spina bifida, including prenatal testing and surgery; new treatments & medications; the link between low folic acid levels and spina bifida; new rating systems for assessing mobility; an overview of orthotics & wheelchair options; changes to federal education law (IDEA); and much more. It also features a resource guide, glossary of terms, and dozens of delightful photographs of children with spina bifida.
Pair this book with our WIRELESS GE WINDOW/DOOR ALARM product to keep children with spina bifida safe.
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