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Children with Spina Bifida

A Parents' Guide, Second Edition
Edited by Marlene Lutkenhoff, R.N., M.S.N.


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$21.95

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isbn# 978-1-890627-77-5  
2008
Paperback
5 1/2" x 8 1/2"
415 pages
Photos
Reading List & Resource Guide

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Acknowledgements

Foreword
Drake Crittenden Ash

Chapter 1: What Is Spina Bifida?
Sonya Oppenheimer, M.D.

Chapter 2: Exploring the Causes of Spina Bifida
Alina L. Flores, M.P.H., C.H.E.S., Katherine Lyon Daniel, Ph.D., and Joseph Mulinare, M.D., M.S.P.H.

Chapter 3: Prenatal Diagnosis
Martha E. Walker, M.S., C.G.C.

Chapter 4: Working through Your Grief
Melody Campbell Goettemoeller

Chapter 5: Why Is Neurosurgery Necessary?
Marion Walker, M.D. and Paula Peterson, R.N., M.S., P.N.P.

Chapter 6: Urologic Concerns
Nan Tobias, M.S.N., R.N., C.N.P.

Chapter 7: Bowel Management
Deborah B. Mason, R.N., M.S.N., C.P.N.P., Kathy Santoro, M.Ed., R.D., L.D., Ajay Kaul, M.D.

Chapter 8: Orthopedic Concerns
Luciano Dias, M.D., Joy Ito, R.N., and Marlene Lutkenhoff, R.N., M.S.N.

Chapter 9: Physical Therapy
Jill Harris, M.A., P.T.

Chapter 10: Other Medical Concerns
Roberta E. Bauer, M.D., Geri S. Palija, R.N., M.S.N., C.S., and Renee S. Rodrigues, M.D.

Chapter 11: Your Child's Development
Patricia Manning-Courtney, M.D., and Harriet Hadley Valentin, M.D.

Chapter 12: Parenting a Child with Spina Bifida
Alysoun Taylor

Chapter 13: Educating Your with Spina Bifida: One Size Does Not Fit All
Vicki Jahns, M.Ed.

Chapter 14: Nurturing an Emotionally Healthy Child
Mary Ann Mulcahey, Ph.D.

Chapter 15: Legal Rights and Hurdles
James E. Kaplan and Ralph J. Moore, Jr.

Chapter 16: The Adult with Spina Biida
Tim Brei, M.D.

Chapter 17: Growing Up with Spina Bifida
Jessica Newbauer

Glossary

Reading list

Resource Guide

Contributors

Index

 
   
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