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Moving Out

A Family Guide to Residential Planning for Adults with Disabilities
Dafna Krouk-Gordon & Barbara D. Jackins


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isbn# 978-1-60613-021-6  
8 1/2" x 11"
226 Pages

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Foreword by Susan Senator


Chapter 1: Getting Ready & Letting Go

  • When Is the “Right” Time to Start Planning?
  • Benefits of Planning Early
  • How Will You Know When You and Your Child Are Ready?
  • How Do You Begin the Discussion?
  • Become an Advocate for Residential Planning
  • Legal Steps You Can Take to Prepare for Residential Living
  • What You Can Do at Home to Prepare Your Child for Independence
Chapter 2: Residential Options
  • Community Residences—How We Got Here
  • Models of Residential Arrangements
  • Group Homes
  • Supervised Independent Living
  • Hybrid Settings
  • Shared Living
  • Communities
  • Selecting a Neighborhood and Dealing with Neighbors
  • Group Home Model Planning Story #1—Family Initiated
  • Group Home Model Planning Story #2
  • Supervised Independent Living Model Story #1
  • Supervised Independent Living Model Story #2
  • Shared Living Model Story
Chapter 3: What Would It Look Like
  • Step #1—Do Your Homework
  • Step #2—Be an Educated Consumer
  • Step #3—Obtain a Residential Assessment
  • Step #4—Decide Who Will Develop and Operate the Residential Arrangement
  • Choosing a Provider Agency
  • Obstacles You Might Encounter When Planning Residential Services
Chapter 4: Finances
  • No Entitlements to Housing Services
  • Cost Factors
    • Staff
    • Housing
    • Transportation
    • Food and House Supplies
    • Staff Training
    • Management
    • Residents’ Personal Expenses
  • Sources of Funds to Purchase the Residence
    • Buying a Single Unit
    • Buying Property as a Group
  • Sources of Funds to Operate the Residence
  • Reducing Costs by Sharing Expenses
  • Sample Budgets
Chapter 5: Ownership of the Residence
  • Reasons to Consider Buying Property
  • Deciding Who Should Own the Property
  • Examples of Arrangements
    • Ownership by the Person with a Disability
    • Ownership by a Parent, Sibling, or Other Family Member
    • “In Law” or Accessory Apartment in a Relative’s Home
    • Leaving Property to a Trust
    • Limited Liability Company
    • Condominium
    • Housing Cooperative
    • Tenants in Common
    • Nonprofit Corporation
    • Housing Donated to an Agency
Chapter 6: Staff and Personnel
  • Job Descriptions, Expectations, Qualifications, and Training
  • Staff Retention and Turnover
  • Should You Employ the Staff Directly or Use an Agency
  • Basic Requirements for Employers
  • Going Beyond the Basics
  • Protecting Yourself
  • Interviewing and Hiring a Staff Person
  • Avoiding Conflicts with the Agency over Staff
Chapter 7: Your Continuing Role
  • Helping Your Child Make the Move
  • Settling In: Where Is “Home?”
  • Having a Formal Role
  • Guardianship
  • Alternatives to Guardianship
  • Having an Informal Role
  • Spending Time at the Residence
  • Helping Your Child Get and Stay Healthy
    • Staying Healthy with a Wholesome Diet
    • Staying Healthy through Exercise
Chapter 8: On Their Own
  • Privacy
  • Individuality
  • Conflicts with Housemates
  • Sexuality and Relationships
    • Sexuality Education
    • Self-governance
    • Intimacy
  • Abuse Prevention
  • House Meetings and Rules
  • Moving On: When Is It Time for a Change?
Chapter 9: Permanency and Longevity: Keeping the Arrangement Going after You Are Gone
  • Planning with Your Child’s Money: Maintaining Eligibility for Public Benefits
  • Planning with Your Own Money: Supplementing Public Benefits
  • Accumulating the Funds
  • Protecting the Funds
    • Strategies to Protect Funds from Nursing Home Costs
    • Strategies to Protect Funds from Creditors
    • Strategies to Protect Assets from Estate Taxes
  • Managing the Assets after You Are Gone
    • How a Trust Operates
    • When to Fund the Trust
  • Transitioning to Future Caregivers
  • Tools the Future Caretaker Will Need
  • Training Future Caregivers
  • Involving Your Child

Chapter 1

  • 1-1: Individual Profile Form
  • Chapter 2

  • 2-1: Photos of Community Living and Connections
  • Chapter 3

  • 3-1: Home Alone Guidelines & Assessment
  • 3-2: Routine/Essential Needs Form
  • 3-3: Learning Style Assessment Tool
  • 3-4: Home Safety Checklist
  • 3-5: Program Maintenance: Agreement with a Management Company
  • Chapter 4

  • 4-1: Sample Staff Schedule
  • 4-2 Resident’s Personal Expenses Worksheet
  • 4-3: Budget Template
  • 4-4: Public Benefits
      • Supplemental Security Income
      • Social Security Disability Insurance
      • The Section 8 Program
      • Medicaid
      • Food Stamps
      • Utility and Fuel Assistance
  • 4-5: Sources of Funds to Acquire and/or Operate a Residence
      • Community Development Block Grant Program Home Investments Partnership Pprogram
      • Rural Housing Programs
      • Section 811 Supportive Housing for Persons with Disabilities
    Chapter 6
  • 6-1: Live-In Expectations/Tenancy Agreement
  • 6-2: Job Description for a Residential Support Professional
  • 6-3: Job Description for an Individual Support Manager
  • Chapter 7

  • 7-1: Furnishings List for Setting Up a Home
  • Chapter 8

  • 8-1: Sample House Rules
  • Index

    About the Authors

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